Seizure Update

Several people have asked me about Levi and how his follow up with Seattle Children's Neurology went.  Thank you to each of you for your prayers and concern! Our appointment had a little good news mixed in with some still concerning news.  After examining Levi, then hearing our account of exactly what happened the day of Levi's seizure, here is what the provider decided about Levi's seizure:

1. Levi's seizure was NOT a complex febrile seizure - His highest recorded temperature at home was 99.5, which medically speaking is not even considered a fever.

2.  The seizure may have been caused by a GI virus, however she was very hesitant to name that the cause also - his seizure happened on a Saturday, he had no symptoms of illness on Sunday, then started vomiting and having an upset stomach on Monday.  So, it's possible there is a connection here, and apparently children suffering from a GI virus are sometimes susceptible to seizures (This was news to us, we were unaware of this before hand).  However, since it was 2 days after his seizure that those symptoms occurs, our provider couldn't make that diagnosis without any uncertainty.

3.  Levi was found to be clinically stable and appeared very healthy, therefore no further testing is needed at this time - She gave us the option of doing an EEG, although she felt very comfortable not ordering one based on his clinical exam.  We are very comforted knowing his CT scan was clear (no brain tumors, phew!) and no matter the reading of the EEG, we would most likely chose not to put him on medication unless another seizure occurs.  So, we all agreed that the EEG wasn't necessary at this time.

4. Bottom line - we watch him closely for a year.  He is the most vulnerable as he is falling asleep or waking up as his level of consciousness changes, so we will need to listen and watch him closely at those times.  We were given a prescription for a "rescue" medication in the event he has another seizure lasting longer than 3 minutes.  If Levi makes it a full year without having a repeat seizure, we should be able to relax with the assumption that he won't have another.  It's not the definite answers we were hoping for, but it's not at all the bad news it could have been.  Still leaves us with some concern, but the good news is she said he looks good enough that further testing isn't needed.
 

Moises and I have both relaxed and are comforted with the belief that Levi will be just fine.  We are not naive, thus we will still watch him closely.  However we don't expect him to have any more seizures (here's to praying our parental intuition is correct!).  We have faith in God to continue to take care of us, and thank each and every one of you that prayed for us and prayed for Levi.